Frustration

Date: 2006-07-02 16:51
Subject: Speaking of consistancy...
Security: Public

There is nothing worse than having one person ruin it for everyone. But in the world of Celiacs this is happen more than you would ever care to know. Daily there are Celiacs who are cheating on their diets and opting to eat gluten rich foods in place of GF goods. They are doing this in restaurants and at stores. They are undermining those of us who need the diet. They are reinforcing to the restaurants and the stores that we are all just being hypocondriacs. They are ruining any repuation we had going for us for consistancy and seriousness.

If you cheat, please don't ask for a gluten free meal and then eat the bread at the table. Please don't send the food back in place of a more tasty meal including all the gluten. You are just ruining any crediblity the rest of us are working so hard to maintain. Don't tell people about your gluten free diet and all it's restrictions and hard ships while sipping on a beer. Honestly, it just pisses the rest of us off.

I have to be on the gluten free diet. I nearly died... and that is not in the least bit sarcasm or exaggeration, and then the GF diet saved my life. I need people to take me seriously, I need to have them realize that what they are feeding me could hurt me. I need all the information they recieve to be correct. But when other celiacs don't care that bread came on the side and touched all their food, or still order the sauce because it only has a little bit of flour in it to thicken it up.... it ends up hurting me.

I even once had a waitress tell me that no one was actually allergic to wheat, that so many of her clients ate menu items with wheat and no one ever complained as long as it was only a little bit or they ate it only once in a while.

Thanks guys! Thanks for blowing our credibility and allowing people to think it's ok as long as it's a little bit.

We have to stick together on this one. We all have to realize that the diet is the ONLY treatment for Celiac disease. Even if you don't feel any pain or don't have any gastro symptoms doesn't mean that you are not hurting your body. 1/50 of a piece of bread is enought to kill 1 cm worth of villi. WHAT ARE YOU DOING EATING ANY GLUTEN AT ALL?????

Take charge of your diet. Get over any stigma you are placing on yourself and ask for what you need. If you don't ask for it, no one will and then nothing will get better. Our bread will stay hugely over priced and our food choices will stay limited. Take charge and demand better. It can only benifit you and your heatlth and maybe thousand of other celiacs along the way.

C'mon guys. Help me out here.